Outcome tools for diabetesspecific quality of life ncbi. O b j e c t i v e to validate a diabetesspecific qualityoflife scale and to assess its psycho. This study identified specific factors for each domain in addition to overall hrqol. Background diabetes quality of life dqol instrument has been widely used to measure quality of life among diabetes patients. Assessing quality of life for new diabetes treatments and.
The 2020 standards of medical care in diabetes includes all of adas current clinical practice recommendations and is intended to provide clinicians, patients, researchers, payers, and others with the components of diabetes care, general treatment goals, and tools to evaluate the quality of care. Patients were excluded if other causes of polyneuropathy eg, renal insufficiency, diabetes mellitus or any. The scale is able to distinguish between patients with different treatment and dietary regimens and to detect social inequities. First published in 2005, it has been used widely around the world as a clinical instrument for opening conversation with ones patients as well as a critical outcome measures in. Validation of a diabetesspecific qualityoflife scale for patients with type 1 diabetes. The addqol questionnaire is a conditionspecific outcome measure suitable for patients with either type 1 or 2 diabetes.
Measurement of the construct varies in specific dimensions but includes aspects of physical, emotional, and social wellbeing. Shortform 12 or shortform 36 to measure qualityoflife changes. The aim of this work is to adapt the dsqols to the population from argentine. Quality of life of patients with diabetes mellitus an. The qol assessment is considered an important measure of outcome in chronic disease management. Ultimately, though, precisely measuring quality of life isnt really that important to us as individuals. Quality of life and psychological aspects of diabetes. The impact of these symptoms on a womans quality of life may be profound. Limited evidence exists on the determinants of quality of life qol specific to adults with type 1 diabetes t1d. The aim of this study was to test the construct validity of the diabetes quality of life for youth dqoly questionnaire in a large representative sample of young people with type 1 diabetes mellitus.
The objective of our study was to assess the quality of life in type ii diabetes mellitus patients with and without complications using the modified diabetes quality of life mdqol17. A major component of health related quality of life hrqol is the idea that we, as a society, are moving to this idea that. Researchers sought to characterize diabetesspecific healthrelated quality of life dhrqol in a worldwide sample of children and young adults. Healthrelated quality of life for prediabetic states and. Scale or resize printed pages in acrobat and reader adobe support. Introduction the aim of this study was to measure healthrelated quality of life hrqol in iranian people with type 2 diabetes mellitus using two different measures and examines which sociodemographic and diabetesrelated characteristics are associated with better quality of life based on a nationally distributed sample. Diabetes dsqols scale life of quality specific aged care tests.
A national consensus is a landmark document that, for the first time, details systematically derived and nationally. Diabetes mellitus type 2 t2d is a chronic metabolic disease with a great impact on health status and quality of life qol in terms of physical, social, and psychological wellbeing. To save the file, click on file in the acrobat menu bar. The diabetesspecific qualityoflife scale dsqols addresses accurately the differences between various forms of therapy in diabetes mellitus dm 1 and. The constructs of the questionnaire were mainly based on these western. Recent shortform quality of life qol measures, such as the medical outcomes study sf36,35 short hypertensionspecific qol form,36 short coronary artery disease specific qol form,37 and short mentalhealth sf36,38 have been successfully developed, in which the goal was to preserve the full item content range, scale structure, reliability, validity, and responsiveness of the original instruments. Development and validation of the asian diabetes quality. The following are the supplementary data to this article. Privacy policy legal notice site map accessibility get adobe reader.
To exit the pdf browser window, click x in the upper right window. Numerous instruments have been used for assessing quality of life in diabetes, 1 which can be broadly classified as generic and applicable to all health conditions e. To construct a type2 diabetes specific quality of life qol tool for asian. Some young people with type 1 diabetes have higher diabetesrelated and healthrelated quality of life measures than others. One hundred women with pcos completed a questionnaire in which they told. Background healthrelated quality of life hrqol has become an important. Healthrelated quality of life and diabetesspecific quality of life represent increasingly narrower concepts. He gave the example of depression, a sign of low quality of life that is very common in diabetes. The objective of our study was to assess the quality of life in type ii diabetes mellitus patients with and without complications using the modified diabetes quality.
Keeping your quality of life with diabetes diabetes self. The 52item dqoly questionnaire was completed by 2,077 adolescent individuals aged 1018 years with type 1 diabetes. The diabetesspecific quality of life scale dsqols is a new instrument with 64 items, of which 10 focus on treatment goals, 10 on treatment satisfaction, and 44 on the perceived burden of diabetes. Development of a healthrelated qualityoflife questionnaire. These patients completed the who quality of life scale whoqol bref. The revised instrument included a 17item diabetes life satisfaction scale, a 26item disease impact scale, and a item diseaserelated worries. Polonsky and others published understanding and assessing diabetesspecific quality of life find, read and cite all the research you need on researchgate. Development of diabetesspecific quality of life module to. Acrobat only, not adobe reader you can set up a pdf to default to specific scaling or print options. Whoqolbref is a generic tool that was proven to be valid and reliable in chronic diseases such as dm. In pakistan, the prevalence of type 2 diabetes is high ranging from 7. The outcomes and indicators are expected to be a utilised by all providers who deliver education. Assessment of quality of life in type ii diabetic patients.
A short form of the diabetes quality of life for youth. Research design and methods patients with type 2 diabetes n 236 who were being treated on an outpatient basis were asked to complete the self. A quantitative research on selfmanagement of type 2 diabetes in middleaged population of rural area of pakistan abstract background. Diabetesdependent quality of life addqol and affecting. Pdf adaptation of diabetesspecific qualityoflife scale for. Development of a diabetes dietrelated qualityoflife scale. Quality of life is complicated and different for each person. A quantitative research on selfmanagement of type 2. The purpose of this study is to investigate the specific quality of life of patients with diabetes mellitus. However, information on health utility weights huws for prediabetic states and t2d are essential to estimate the effect of prevention initiatives. Quality of life instrument for indian diabetes patients qolid. The diabetes quality of life dqol measure was devised for the diabetes control and complications trial dcct 42, 43 and the diabetes quality of life clinical trial questionnaire dqlctq was incorporated into treatment trials with insulin lispro 44, 45.
Complex medical studies found that those with diabetes report better quality of life than people who have a variety of other chronic conditions such as cardiac problems, epilepsy with seizures, arthritis, multiple sclerosis, stroke and lung problems. Health related quality of life in patients with type 2. A prospective descriptive study was conducted over 6 months, after taking ethical committee approval. Brief description of instrument diabetes specific measure of health related quality of life for use with adults and adolescents. Then click on save, name the file and identify the drive where you want to save the file. Pdf assessment of quality of life in type ii diabetic. Practice guidelines resources american diabetes association. Research design and methods to assess the quality of diabetes care in a populationbased study, a representative sample of 684 patients with type 1 diabetes was examined.
The same steps for scoring whoqol100 should be followed to achieve score for this version. Further, it appears no study has compared the determinants of qol between t1d and type 2 diabetes t2d groups. Linguistic and psychometric validation of the diabetesspecific. Patient perceptions of quality of life with diabetes. This study aimed to develop a revised version of dqol instrument that incorporated issues of redundancies in the items and strengthen the basis of validity of the instrument. Diabetes selfefficacy questionnaire dseq outcome measurement for diabetes education effective outcome measurement of diabetes education programs requires valid and reliable measures that are sensitive to clinical change in program participants and demonstrate stability in the absence of intervention. Pdf validation of a diabetesspecific qualityoflife. Validation of a diabetesspecific qualityoflife scale. A pilot study was conducted and the whoqolbref edition 2004 in english was coadministered for comparison. Study population was consisted by 258 subjects with t2d attending diabetic. Development of diabetes specific quality of life module to be in conjunction with the world health organization quality of life scale brief version whoqolbref chungying lin1, tsungying lee2, zihjie sun3,4,5, yiching yang3,5, jinshang wu3,5 and huangtz ou2,6,7 abstract. Although scoring the brief version is identical to scoring the whoqol100, there are some differences that need to be addressed.
Healthrelated quality of life and its associated factors among adult. The evaluation of two measures of quality of life in patients with type i and type ii diabetes. Quality of life is a broad concept that the individuals physical and mental health is affected. The aim of the present study was to measure diabetesdependent qol and affecting factors in patients with t2d. Quality of life in diabetic youths the first study to report on drqol in youths was done by ingersoll and marrero. The diabetesspecific qualityoflife scale dsqols addresses accurately the differences between various forms of therapy in diabetes mellitus dm 1 and investigates the level of patient satisfaction with their current treatment in relation to their individual goals. Determinants of quality of life in adults with type 1 and.
Objective the purpose of this study was to assess the reliability and validity of the diabetes dietrelated qualityoflife ddrqol scale, which is a measure of the influence of diet therapy on patients quality of life qol. Patientassessed health outcome measures for diabetes. Bergervalidation of a diabetesspecific quality of life scale for patients with type 1 diabetes. Development of diabetesspecific quality of life module to be in. Type 1 diabetes treatment guideline kaiser permanente. Newcastle mitochondrialquality of life measure was.
The development of quality of life instrument for indian. Understanding and assessing diabetesspecific quality of life. Quality of life of patients with diabetes mellitus an overview of research in primary health care in the nordic countries per e. We quantify patients utilities a measure of preference for the full array of diabetesrelated complications and treatments. Validation of a diabetesspecific qualityoflife scale for patients with. Objectiveunderstanding how individuals weigh the quality of life associated with complications and treatments is important in assessing the economic value of diabetes care and may provide insight into treatment adherence. Quality of life and psychological aspects of diabetes ment health hum resilience int j quality of life and psychological aspects of diabetes nafiaa h, benchikhi l and ouanass a arrazi psychiatric hospital, mohammed v university, morocco. Development and validation of the diabetes quality of life.
Rubin says it is a combination of satisfaction with your life and happiness. Objective to validate a diabetesspecific qualityoflife scale and to assess its psychometric properties in a large sample of patients with type 1 diabetes. Adaptation of diabetesspecific qualityoflife scale for. Diabetes complications negatively affect quality of life as do depression, aging. This study was aimed to develop a diabetesspecific quality of life questionnaire module dmqol to be in conjunction with the world health. Validation of a diabetesspecific qualityoflife scale for patients with type 1 diabetes article pdf available in diabetes care 215. Administration technique selfadministered questionnaire.
A practical guide to selecting the best instruments and using them wisely. A new study published in diabetes care may be able to show what behaviors or factors help to achieve this. Quality of life qol is a frequently employed construct in studies of children with diabetes, and is critical for evaluating health outcomes in clinical trials and for decisionmaking in health care. The dds is a 17item scale that captures four critical dimensions of distress. Related quality of life measurement in type 2 diabetes. Recommended physiologic insulin replacement schedule. The outcomes and indicators for diabetes education.
More recently, an individualized measure, the audit of diabetes dependent. Type 2 diabetes t2d decreases healthrelated quality of life, but there is a lack of information about the health status of people in prediabetic states. To assess the quality of diabetes care in a populationbased study, a representative sample of 684 patients with type 1 diabetes was examined. Validation of the asian diabetes quality of life asiandqol questionnaire in english. Diabetic complications, comorbidities, and cost of treatment affect the quality of life qol of an individual. Initial development and validation of a mitochondrial disease quality. Shortform 36 sf36 is a selfreported questionnaire that is frequently. Depression predicts health outcomes better than hba1c or bodymass index.
We tested the psychometric properties of hrqol measures using the diabetes. To validate a diabetesspecific qualityoflife scale and to assess its psychometric properties in a large sample of patients with type 1 diabetes. Development and validation of the asian diabetes quality of life. The who quality of life scalebrief whoqolbrief, still in field trials, is a subset of 26 items taken from the whoqol100. Hence there is a need to develop disease specific hrqol measures that centre on. Patientreported health instruments used for people with diabetes introduction diabetes is a disorder of glucose metabolism caused by a lack of the pancreatic hormone insulin, which results in the accumulation of sugar in the bloodstream hyperglycaemia and the appearance of sugar in the urine.
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